I have started this blog as a way to update on my health. I didn't feel Caring Bridge was the right place for posts. So after a lot of thought I decided a blog spot would work.
Let me start first with this before I jump into the real heart of this blog. - I have dyslexia. I use to say I had. But I have learned once you always have it. You just learn how to manage it. You learn tricks. Skills and ways to help yourself. But dyslexia is never gone. Mine shows stronger especially when I am tired and stressed. The area that will affect everyone reading and following this blog is in my grammar and spelling. I do my best. I will reread. I use spell check. But it only does so much. Sorry. I am going to apologies here now, up front and ask for your patients, forgiveness and understanding. I know some people can not get past this. These people then please don't follow my blog. If you want updates connect with John or my parents if those are your connections. Now on to what this blog is about. Thanks for those who are still here.
There is a lot going on. First let me give you some background and then I will catch you up to what is happening.
When I was 6 months old I had bars in between my feet. This was was because my feet were turned in so severely I would trip over them. Then I was diagnosed with Juvenile Arthritis. This lead to my ankle instability and then "arthritis". To Osteoarthritis (OA). At the age of 18 my Sr. year of high school I had my ankle first surgery at Mayo clinic. After this I proceed to have around 11 foot and ankle surgeries. Everything from reconstructions, tendon transfers, tendon transplant, foot fusions, removal of arthritis and bone spurs, achles lengthen and much more. In 2018 I had a my right rotator cuff repaired from being torn.
So this is some of what I have gone through briefly in the last years. Since 2018 other things have started to tear and be dislocating. 2020 was a really hard physical year. I started to advocate for myself and figure out what is going on. I have came to many dead ends. I ordered my Dr. reports from foot Dr. Where I did find I have Degenerative joint disease. This lead me to OA. This lead me to dig in to OA. Now remember I have had arthritis for my whole life. At some point I was told I had OA.
I never thought much of OA. I thought OA was “just” arthritis. No one explained to me what OA was. What it dose to a persons body. Maybe it was because I was so young. Maybe it was because the Drs. really never where sure it was OA doing all this damage to my body. I have asked my specialist why are my feet doing this? I have been told "I don't know. But I know how to fix it." I was never told It was OA destroying my body.
Now I am on a search to find out what is going on with me.
What is wrong.
I will take you on my journey as John and i search for answers. I have started this search and I will be adding more posts soon on this.
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